The International Arab Journal of Information Technology (IAJIT)

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Linking Palliative Homecare to the Universal Health Coverage Principles and the United Nations Sustainability Development Goals Using the i* Framework’s Strategic and Social Requirements Modelling, Applied to a Cancer Care Organisation

Adherence to the Universal Health Coverage (UHC) principles in relation to palliative care is a key WHO directive to attain as a right for every citizen. However, UHC principles have been observed to be hindered by several barriers. Moreover, the UNSDGs, and in particular the UNSDG 3, demands “Good Health and Well Being” with the two key indicators UNSDG 3.8.1 and 3.8.2 that can be considered as metrics to assess governance conformance to palliative care. This paper reports on addressing the current research gap in linking the UHC principles to UNSDGs and, in particular, UNSDG3 and the WHO identified Palliative Care Barriers (PCB) using the i* framework Strategic Dependency (SD) and Strategic Rationale (SR) models applied to Home Healthcare Care (HHC) of a regional cancer care organisation, namely King Hussain Cancer Center (KHCC). Building on our i* HHC SD and SR developed models, and for HHC being an essential and critical part of palliative care, an integrated framework has been developed that not only links UHC principles and WHO barriers of palliative care to UNSDG 3, but a full network of dependencies that facilitates observing the linkages and impact of the most critical and strategic actors in HHC on the UHC, barriers to palliative care and UNSDG 3. Furthermore, such highly comprehensive UHC-PCB- UNSDG-i* framework network instantiations have led to identifying patterns of categories or groups of associations between UNSDG3 KPIs, UHC principles, WHO PCB and HHC actors. Hence, this contributes to healthcare policy and decision makers to revisit their policies, plans, budgets, and constraints for the deficiencies in the qualitative satisfaction of the UHC principles and how PCB can be alleviated in association with the actors in the i* SD and SR models and associated goals, tasks and resources. A further corollary of this research is that change impact analysis can be timely attained to study the impact of a change driven by updating goals, tasks, and resources of the i* model to improve adherence to the UNSDG3 KPIS and UHC principles. Finally, this work has inspired work in progress to develop a data analytics platform from the evolving instances of applying palliative care processes using the resultant UHC-PCB-UNSDG-i* framework.

[1] AlHajHassan S., Odeh M., Green S., and Mansour A., “A Semantically Enriched Goal-Oriented Referential Integrity Model in Systems of Systems Context,” The International Arab Journal of Information Technology, vol. 16, no. 3A, pp. 565- 576, 2019.

[2] Anton A., McCracken W., and Potts C., “Goal Decomposition and Scenario Analysis in Business Process Reengineering,” in Proceedings of 6th International Conference on Advanced Information Systems Engineering, Utrecht, pp. 94- 104, 1994. 556 The International Arab Journal of Information Technology, Vol. 20, No. 3A, Special Issue 2023

[3] Carstairs S., “Raising the Bar: A Roadmap for the Future of Palliative Care in Canada,” The Senate of Canada, Canada, Report, 2010.

[4] Fakhoury M., Shamieh O., and Johnston B., “Supporting a Human-Centered Home Health System in Jordan,” Dai-global- developments.com. https://dai-global- developments.com/articles/supporting-a-human- centered-home-health-system-in-jordan/. Last Visited, 2022.

[5] Final list of proposed Sustainable development goal indicators, Report of the Inter-Agency and Expert Group on Sustainable Development Goal Indicators, 2016. https://sustainabledevelopment.un.org/content/do cuments/11803Official-List-of-Proposed-SDG- Indicators.pdf. Last Visited, 2023.

[6] Franch X., López L., Cares C., and Colomer D., “The i* Framework for Goal-Oriented Modeling,” Domain-Specific Conceptual Modeling, Concepts, Methods and Tools, Springer International Publishing, 2016.

[7] Goal 3 | Department of Economic and Social Affairs, United Nations, 2020. https://sdgs.un.org/goals/goal3. Last Visited, 2023.

[8] Gomes B., Calanzani N., Curiale V., McCrone P., Higginson I.J., and de Brito M., “Effectiveness and Cost-Effectiveness of Home Palliative Care Services for Adults with Advanced Illness and their Caregivers,” Cochrane Database of Systematic Reviews, no. 6, 2013. https://doi.org/10.1002/14651858.CD007760.pub 2.

[9] Green S., “Goal-Driven Approaches to Requirements Engineering,” Technical report, Imperial College, University of London, 1994.

[10] Hofmeister M., Memedovich A., Dowsett L., Sevick L., McCarron T., Spackman E., Stafinski T., Menon D., Noseworthy T., and Clement F., “Palliative Care in the Home: A Scoping Review of Study Quality, Primary Outcomes, and Thematic Component Analysis,” BMC Palliative Care, vol. 17, no. 41, pp. 1-7, 2018.

[11] Johansen H., Grøndahl V.A., and Helgesen A.K., “Palliative Care in Home Health Care Services and Hospitals-The Role of the Resource Nurse, A Qualitative Study,” BMC Palliative Care, vol. 21, no. 1, pp. 1-8, 2022. https://doi.org/10.1186/s12904-022-00956-x.

[12] Johnston B., “Is Effective, Person-Centred, Home-Based Palliative Care Truly Achievable?,” Palliative Medicine, vol. 28, no. 5, pp. 373-374, 2014. doi:10.1177/0269216314529858

[13] Kavakli E. and Loucopoulos P., “Goal Modelling in Requirements Engineering: Analysis and Critique of Current Methods,” Information Modelling Methods and Methodologies: Advanced Topics in Database Research, Idea Group Publishing (IGP), pp. 102-124, 2005. doi: 10.4018/9781-59140-375-3.ch006.

[14] Odeh Y., Green S., and Odeh M.. “Deriving Goal- Oriented Models from Business Process Models: Applied to Cancer Care Organization,” in Proceedings of 1st International Conference on Cancer Care Informatics (CCI), Amman, pp. 125- 135., 2019.

[15] Palliative Care, World Health Organization, 05- Aug-2020. www.who.int/news-room/fact- sheets/detail/palliative-care. Last Visited, 2023.

[16] Phalp K. and Shepperd M., “Qualitative Analysis of Static Models of Processes”, The Journal of Systems and Software, vol.52, no.1, pp.105-111, 2000.

[17] Pistra Tool, https://www.cin.ufpe.br/~jhcp/pistar/, 2021.

[18] SDG target 3.8 achieve Universal Health Coverage (UHC), World Health Organization, 2021. https://www.who.int/data/gho/data/major- themes/universal-health-coverage-major. Last Visited, 2023.

[19] Shamieh O. and Hui D., “A Comprehensive Palliative Care Program at a Tertiary Cancer Center in Jordan,” American Journal of Hospice and Palliative Medicine, vol. 32, no. 2, pp. 238- 242, 2015. https://doi.org/10.1177/1049909113513316.

[20] Sony P. and Nagarajan S., “Semantic interoperability model in healthcare internet of Things Using Healthcare Sign Description Framework,” The International Arab Journal of Information Technology, vol. 19, no. 4, pp. 589- 596, 2022.

[21] Tbaishat D., Odeh Y., Kharbat F., Shamieh O., and Odeh M., “Critical Analysis Of Palliative Homecare Using The I* Framework’s Strategic And Social Requirements Modelling Applied To A Cancer Care Organisation,” in Proceedings of the International Arab Conference on Information Technology, Abu Dhabi, 2022. DOI: 10.1109/ACIT57182.2022.9994182

[22] The 17 goals | sustainable development, United Nations, 2019. https://sdgs.un.org/goals. Last Visited, 2023.

[23] Universal Health Coverage (UHC), World Health Organization, 2022. https://www.who.int/news- room/fact-sheets/detail/universal-health- coverage-(uhc). Last Visited, 2023.

[24] Ventura A.D., Burney S., Brooker J., Fletcher J., Ricciardelli L., “Home-Based Palliative Care: A Systematic Literature Review of the Self- Reported Unmet Needs of Patients and Carers,” Palliative medicine, vol. 28, no. 5, pp. 391-402, 2014. https://doi.org/10.1177/0269216313511141. Linking Palliative Homecare to the Universal Health Coverage Principles and the United Nations ... 557

[25] Yu E., Giorgini P., Maiden N., and Mylopoulos J., Social Modelling for Requirements Engineering, MIT Press, 2011.